I can’t believe we’re in the third week of January I’m so behind with my blogging!
Hello, everybody, I will come back to my channel in this video I will be telling you some of the issues that wheelchair users face on public transport.
Continue reading “TFL Issues: The Problems Wheelchair Users Face on Public Transport”
A short statement from Elizabeth Howard
only tried light writer I use phine on it and notes I have had lots of issues with battery running down. Mrs armitage sorted out so I could have one. It would depend on their disability.
Dear Cerebral Palsy,
I do not hate you. I do not regret you. In fact, I feel blessed to have been able to grow with you. To be quite honest, I did not feel any of this love and acceptance until recently. I’m sorry. You see, throughout most of my life I have had what felt like a hole in my heart. An emptiness that I assumed was due to me not fitting in among my peers or in society. In actuality, this emptiness was created by me. It wasn’t that I longed for acceptance from my peers or society, but I longed for it in myself.
Continue reading “Dealing with cerebral palsy Sally Ann’s story”
Can you explain what your disability is
Okay? Cutting a long story short I have cerebral palsy it’ means that I can’t walk i’m primerrly a wheelchair user and I need help with everyday tasks Issues I have overcome of things like learning to Continue reading “Dealing with cerebral palsy”
Explain what your disability is?
I have suffered from epilepsy since I was 4&half years old. Along with epilepsy, I have a moderate learning disability and I am on the autistic spectrum.
Explain what your disability is?
I have Asperger’s Syndrome (a type of Autism), which is thought of as a learning difficulty or learning disability; it basically means my brain works differently to the brains of neurotypical people. Some people think someone having Asperger’s is a bad thing as we find some things (such as socialising and eye contact) difficult but I think we’re just different, as we often find some things easier than other people (such as maths and remembering things).
Good afternoon everybody and welcome back to my channel, I am back because I’m really really really excited because I think I had a breakthrough today and I want to tell you guys all about it
Continue reading “My Breakthrough of the Month: A Moment I Had to Share”
Can you tell us a bit about yourself?
My name is Ben, I’m an Artist. I enjoy collaborating and working with others to make Art. I’m 36 years old, I also enjoy swimming,
Hello again everyone in this blog post I will be telling you my opinion of what the ups and downs of blogging are. Just what I’ve learnt along the way.
Main good points
you can blog about anything you want, you can really tap into your creativity, also the opportunities for collaborations are endless.
Can you tell us a bit about yourself? What is it you do?
I’m a composer who writes music for films, TV and my own records and concerts.
What is inspires you to keep doing what you doing?
For me there are big and small inspirations. A big one might be playing a concert, and being in the same room as people who are enjoying your music, or watching a TV show and knowing that millions of people are hearing your music at the same time, but I think the small daily inspirations are the ones that keep me going. I’m still fascinated with the magical nature of music, and how putting one note after another can have such a profound emotional effect on us. Every morning when I sit down to work there’s that excitement that by the end of the day, some music will exist which wasn’t in the world the day before.
Can you tell us a bit about yourself?
“I’m an artist, writer and part time superhero. I also have Tourettes Syndrome, which means I make movements and noises I can’t control called tics. I’ve got short curly hair and a very cool wheelchair.”
Continue reading “Meet The Real Life Superhero Behind Touretteshero”
In this video I’ll be telling you my opinion on Black Friday is Black Friday is tomorrow Continue reading “Black Friday”
Hi and welcome back
In today’s video, I’m going to be talking about interviews and what I’ve learnt along the way.
Tips
1 make the interviewee feel comfortable
Example 1: offer them a drink
Example 2: make it clear that they can pause at any point for a break.
Example 3: you can tell us whatever you feel comfortable with.
Well, what a treat I have for everyone today: a unique interview! So please read the story to meet the real person behind the shades.
Can you tell us a bit about yourself?
I am an autistic mum of autistic children. I was diagnosed with Aspergers 4 years ago.
What is the Taxicard Scheme?
The London Taxicard Scheme provides subsidised, door to door travel for London residents with severe mobility or visual impairments. It allows for travel in licensed taxis or private hire vehicles.
Continue reading “Taxicard: Everything You Need to Know About London’s Scheme”
For those of you that don’t know me, I’m Lilly Cook and I
Continue reading “Preparing for a Day or Evening Out with a Wheelchair”
Explain what your disability is
I have suffered from epilepsy since I was 4&half years old. Along with epilepsy, I have a moderate learning disability and I am on the autistic spectrum. Issues with my epilepsy are seizures which I have medication for and I have had multiple brain surgeries for.
Hear what some of the audience members thought.
On Tuesday the 18th of July, as par tof the heart n soul takeover for the #Big30Archive project. Heart n Soul have been doing live internet shows.
When I first found out this was happening I was really excited. Continue reading “Summer vs Serious: Taking Over the #Big30Archive”
Well, we have finally kicked the big 30 birthday celebrations into action and what an amazing start it was!. The chat up was full of many inspirational people, it was a great celebration shared by all of the people involved with the big 30 and heart and soul. & What a celebration it was, Tilley and Del done a fantastic job at hosting as always, also mark and pino were being interviewed by Tilley. The event was brilliant, we even got BBC news coverage about the big 30.
Guy, unfortunately, the link the BBC IPlayer price is no longer available, so here are some of the images instead.
The #Big30Archive project was featured in the guardian today (11/07/2017) which personally I think is a big Continue reading “The Online Guardian: When the #Big30Archive Made the News”
I also got interviewed for The Big 30 as part of The Media Team with Shalim and Nicola. Don’t get me wrong the interview was fine, but it didn’t feel right to be one of the people being interviewed. I’m okay with being interviewed – I’m not saying I haven’t or won’t be interviewed again – but I now realise I prefer to be the interviewer! Continue reading “The Media Team Big 30 Interview “
Andeans Big 30 interview was so unique and interesting to be at, as I knew he is a busy guy but I didn’t quite realise how busy he gets.
Continue reading “An oral history interview with Aldean Blear”
This interview went by like a breeze, it was so easy. We asked for one or two questions and Lizzie spoke for the whole two hours – it was great she was so expressive and with everything she explained she elaborated with beautiful expressions.
Now I’ll be honest, it was the shortest oral history interview Cherry and myself have ever been in, however it was an interview nonetheless!
What can I tell you about The Fish Police – wow they are busy guys. They’ve been on tour all around the UK and overseas, they’ve performed in New York and Turkey.
Ok so by now you know I’ve been doing the #Big30Archive interviews for a while now and I’ve loved every single interviewee – I genuinely do – but there is something really special about Ricky and Jenny Continue reading “An interview with Ricky and Jenny “
Keith spoke a lot about the early days of Heart and Soul and about the various different manager job titles he had whilst he was working at Heart n Soul, from store manager to road manager and many more that he I can’t remember.
Now what can I tell you about Tilley and Del the Pig
She spoke a little bit about her family we met mummy bear, nanny hippo, her dad and step mum and how long it took the whole family to come to terms with Tilley’s diagnosis.
Oh my we learnt so much about Dean that I didn’t know, Dean spoke a lot about the DRS (Dean Rodney Singers Continue reading “A Big 30 interview with Dean Rodney Junior “
On Friday the 27th January I had my #Big30Archive photoshoot with Frank, I didn’t realise how tiring doing a photoshoot would be.
On Thursday the 26th January I Binterviewed Jacqui, and oh my gosh it was amazing. I loved her, and hearing stories about her family and what life was like for her growing up.
For those of you who don’t know, Jacqui Beckford is the British Sign Language (BSL) interpreter that Heart n Soul have at most of there big events, so that the event can be fully accessible. Continue reading “An interview with Jacqui Beckford “
Because Heart n Soul is 30 this year we are creating a massive #Big30Archive. The archive will live forever in Continue reading “The London Metropolitan Archives”
I know right when you first hear or read the words ‘oral history training’ you think well this is going to be boring, but in my own opinion it was okay, the first session before Christmas and the last season were the best, but the one in the middle felt to me like parts of it was repeated.
On Tuesday the 24th of January i interviewed Lisa and Lolita, what an interesting chatty pair they are.
I think my favourite question of the interview was can you tell us about your Heart n Soul experience? – I think it’s because you never know quite what people are going to say, because everyone’s experience is different.
On Tuesday 17th of January I had the pleasure of interviewing one of the coolest bands around Too Hot For Candy
We would be in the middle of a question or they would be in the middle of their answer and they would stop and just start singing I loved it .
I need to tell you all that It goes Continue reading “An interview with Too Hot For Candy “
Well The heart n soul chatterbox team bring you another episode Continue reading “It’s Christmas: A Chatterbox Christmas Special”
So Tuesday was the first official #Big30Archive interview with Terry Crew, oh my gosh it was good. It was really interesting to listen to Terrys story and get his opinion on this through his perspective.
I will admit to you now I was really happywith how it went considering it was our first one.
Now in the training we were told not to interrupt and let the interviewee talk, and not to um and ah. My downfall was I got sidetracked with listening and because I didn’t want to interrupt we didn’t
Continue reading “Big 30 Interview with Terry Crew: The Story Behind the Project”
Continue reading “Big 30 Interview with Terry Crew: The Story Behind the Project”
The SEN Music Development day conference was an action packed full day of performances workshops and opportunities to try new things! I interviewed a range of different people at the workshops and some workshop leaders I asked them a few questions to just hear what their experience at this event has been like. Continue reading “SEN Music Development Day: A Day of Music, Workshops and New Ideas”
Now I said to myself that I would write this blog post at the end of the project but I think it’ll be easier for me to write about my thoughts and feelings about the project as they come up.
Now I will be totally honest with you, all I know already is that I’ve been pushed to limits I never thought existed already and that’s just organisational wise trying to sort out dairy clashes. Because I’m one of those people who once something is booked in, I don’t like to let anyone down, so I’m juggling appointments and meetings around so I can fit in as much as I can. And we are still only in the planning meetings stage!
Continue reading “Big 30 Planning Meetings: The Beginning of Something Special”
Chat up was so funny, can I just say Jess Thom and Liz Carr were hilarious and I’m so glad they had a sense of humour about disability because that is very hard to come across somedays.
Loop Berlin 2016
We arrived on the Thursday 3rd of November by the time we got to where we were staying after a mix up with taxis, there was just enough time for us to find something to eat before bed as we were all really tired.
This weekend I went to the Mozilla Festival 2016 as part of @ShapeArts Young Leaders Forum to help out Shape Arts and @WacArts to facilitate a workshop. In the workshop we wanted to concentrate on answering the question,
Today I went to the #nativemeetup to introduce ourselves to all the hacker ms that feel they are brave enough, to take on our challenge of designing a successful piece of equipment for @heartnsoulart to use,
So Ashley Dean Lizzie and myself went to to a talk to all of the music makers / developers to tell them a little bit about what heart n soul is? and what we do? I thank you all today for listening to us and to all
Now I just want to say a few thankyous to Native Instruments London, Continue reading “Native Instumnts Meet Up “
Beautiful octopus club summer 2016.
Well what can I say this beautiful octopus club was an amazing one – well they are always amazing but this was the iconic event we was all waiting on to kick off Heart n Souls 30th birthday celebrations.
The EFDSS conference
The English Folk Dance And Song Society got in touch with the sound connections and asked if myself and sound connections would support them in the conference.
16 hours and no more
This is a blog I really wanted to do, mainly to answer a couple of questions that most disabled person that is tied up with the benefit system wants to know and that is…
This is a review that i wrote on behalf of shape arts.
Of all the events taking place, I choose to go and see “11 Million Reasons” however it wasn’t what I expected at all. I will admit it was really good to see disabled people’s interpretations of the iconic scenes from popular films that we would all recognise.
Continue reading “Unlimited Festival Review ” 11 million reasons””
The Maritime Museum
We are here to bring disability to the front of the museum and show them in a positive light
After four days of work, here is what everyone in the team has come up With
Nelsons letter
When I first saw the letter that Nelson wrote using his left hand I didn’t like the way he described himself as being burden to his friends an country. But I do like the way Nelson overcame all his barriers an still mantained I high level of power in the end.
As part of the shape arts youth forum we were asked who was able to help represent shape arts and Wac Arts at the Liberty festival 2016 so myself and Jessica said we would help out, I was the first one there from shape so I didn’t quite know what to do at first but we spent the morning giving out leaflets and spreading the word about shape arts and youth forum.
Guys I don’t normally do this but I genuinely couldn’t of said it better myself guys even famous people face there challenges Continue reading “Even famous people face barriers “
Well guys the latest Chatterbox podcast is called Who We Are, don’t worry I know what you’re all thinking WOW! “That’s a big subject”
So I’m going to try and break it down for you it should make it a little bit easier for you all.
Last night I went to Lizzie Emeh’s second album launch. It was an epic night, as I knew it would be! There was a really good atmosphere, Continue reading “Lizzie Emeh’s EP Launch”
Last night Mark, Shalim and myself was Heart n Souls representatives at the Charity Governance Awards 2016.
Unfortunately – we didn’t win last night – we were pipped to the post by LEAP (Tom Lawson’s organisation) a Continue reading “Charity Governance Awards”
I don’t usually do this but I’m going to write a post about a story Continue reading “Interesting new research “
It all started when me and Karen got in the cab at 5pm, and managed to arrive 90 minutes early to the Jumeriah Carlton Tower. It was slightly awkward.
I was lucky enough to be invited to attend the Music Teachers Award for Excellence as part of the Heart and Soul Sound lab team. Continue reading “Music Teachers Awards For Excellence”
As a a group when we decided to do a radio project on feeling good,
Then we were all assigned our individual peaces of research to do. myself being the journalist of the chatterbox crew. Continue reading “Feeling Good: Finding the Music That Lifts You Up”
Hi everyone I hope you well, I wondered if you would be able to help me spread the word as part of their 30th birthday celebrations @HeartnSoulArt are creating the Heart n Soul choir, giving a voice to people with learning disabilities. They need YOUR help to raise £6,200. This will mean that they can offer FREE choir sessions to everyone! You can donate a little, or a lot, every donation will make a real difference! Donate today here: http://www.crowdfunder.co.uk/the-heart-n-soul-choir many thanksHeart n Soul need your help to raise £6,200 for a community choir in Deptford for people
Continue reading “The Heart n Soul Choir: Help Us Give a Voice to the Celebration”
Well, firstly let’s start with SoundLab Play Space – what a crazy day it was! From 12-8pm we were running on a very, very tight schedule. SoundLab Play Space took place at the Nesta building in London. It was a day where people could try out different equipment to make them realise how music-making can be put simply and made easy for everyone. Continue reading “SoundLab on tour”
A while ago I did a piece of work for Sound Connections talking about people’s journeys and how they got into music. I chose to do my video on Kali, there’s not very much more to say – I’m going to let the video talk for itself!
Honestly guys it was over so fast! What’s that saying everyone says, “blink and you’ll miss it”.
What happened when we got there…
– checked in to the hotel.
– went for dinner. Continue reading “Brussels in a Flash: A Fly-by Visit I Won’t Forget”
Today I went to Music Learning Revolution in London with Justin and Richard to do a talk about Heart n Soul’s SoundLab.
It went really well. OK, I’m not going to lie, I’ve done a fair few SoundLab talks now and it feels quite good!
SoundLab talks and events have taken place at Abby Road, other places in London, Birmingham and probably a few more places that have unfortunately slipped my mind!
Continue reading “Music Learning Revolution: Taking SoundLab to London”
Hi guys, here is my blog for Stay Up Late Uk Brighton. The blogs about how
Continue reading “Guest Blog for Stay Up Late: Sharing My Experience”
https://m.youtube.com/watch?v=ZOy0YgUDwDg
Guys I don’t normally do this but please I found this video a while ago I found this really motervational video that everyone needs to see and share.
It all started at 7.30 in the morning we were picked up by a cab that dropped us to Euston station – we were in the cab for 2 hours because we were in rush hour traffic. We got to the station later than expected and we missed our 9.23 train!
We got on the Virgin train to Birmingham, we were on the train for an hour and a half then we reach Birmingham New Street Station.
We made it to Birmingham now all we had to do was find where the event was taking place! After reading the place was only a short walk away we set off.
Our short walk – well my short wheel! We’d made it to the event. Continue reading “SoundLab Goes to Birmingham: A Busy Day of Music and Travel”
not so long ago i was lucky enough to go to the utopia exhibition at the round house.
all i could think as i was going around the exhibiton was WOW, i would love to be part of the team that put this all together.
who came up with the idea of the whole thing? and how did they manage to put it all together?
Continue reading “Utopia at the Roundhouse: An Exhibition That Made Me Want In”
The Shape Arts course is amazing! Through being part of the Inspiring Futures program they help you to realise what you can achieve and break it down into manageable steps. Continue reading “Inspiring Futures: Turning Big Goals into Steps to Success”
Not so long ago as part of a course I was lucky enough to be invited to a behind the scenes tour of the Southbank Centre.
No, I’m not going to lie I have been to the Royal Festival hall a number of times and helped out with a number of different events but it’s no Continue reading “The Southbank Tour: Behind the Scenes at the Southbank Centre”
A few weeks ago I was lucky enough to go to the Roundhouse as part of a course with Shape Arts. We went there to do a workshop in radio production. We learnt how producers plan their shows and had the opportunity to pretend to put our own show. Me, Kerry and Mackinlay worked together, we called our show the ‘Third Wheel’ to turn it on it’s head as only 2 of us are in wheelchairs. Continue reading “Round and Round the Roundhouse: Learning Radio Production”
I had a call from Mark to ask if I would do a talk with Justin and Ashley at Abbey Road about the SoundLab project. In true style, I found out about this last minute, it’s quite lucky that I work well under pressure! So only having 24 hour’s notice we planned to do the talk interview-stylee. Continue reading “Abbey Road antics!”
Check out my video from Heart n Soul’s Squidz Club – all filmed on a GoPro!
Check out my new video reviewing the UK and Finnish entries to Eurovison!
I’ve been learning how to use the tiniest, most professional camera that’s on the market right now. To be honest it’s quite easy. I wasn’t expecting it to be as easy as it was. It’s literally just two buttons. That’s it! The only thing I’m yet to master is keeping it steady and getting a good flow – but that will come the more I use it. Continue reading “Go PRO Fun”
Since being involved in the People Skills project I have formed a clearer idea of what I want to with my life.
I have learned more about the various organizations that are out there doing the same thing or similar to what I want to achieve. Continue reading “My Toucan Employment Experience: Finding My Direction”
Here you go
.
Hi, I’m Lilly — a reviewer, creator and perspective-led storyteller sharing my thoughts on books, life, disability, creativity and the things constantly on my radar.
This blog is a mix of honest reviews, personal experiences, opinions and cozy chaos. I love conversations that make people think, feel included and see the world a little differently.
Continue reading “All about me!”
Recent Comments